Choroid plexus tumors arise from normal tissue in the brain which produces cerebral spinal fluid, the "choroid plexus". There are three types: choroid plexus papilloma, atypical choroid plexus papilloma and choroid plexus carcinoma.
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Surgical resection, chemotherapy and radiation are the most important treatments. In the best case scenario, only a surgery is neccessary. Follow up brain imaging (MRI) will then asure the tumor did not come back. In the worst cases, all three treatments are necessary, sometimes even more than once.
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Two treatment studies recommend first treatment: The CPT-SIOP-2000 and the CPT-SIOP-2009 studies. A recurrence study is used when the tumor came back. A registration allows to enter information even when the patient did not follow the treatment recommendation. This website allows patients to donate information as family-registration.
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